Quote:
Originally Posted by LordWood
At a year and a half i was diagnosed with Ulcerative Colitius and than in 2004 diagnosed it had become Crohns. From a year and a half till 2004 i was pretty much ok with the disease on just immuran and predisone only having the occasional flare up in the fall. Reason i was on immuran and predisone and not the 5ASA compounds which were the usual treatment for colitius and crohns patients when i was first diagnosed at a year and half was because i am allergic to the 5ASA compounds. So a mixture of immuran and predisone worked to help me stay in control. Once i was five i was doing so good they even decided to take the predisone out of the picture and i was just on immuran other than when i would get a flare up i would go back on the predisone but once better would be weaned off again. Problem is once my was diagnosed as crohns my ability to be under control stopped my doctors tried higher doses of predisone and immuran as high as they could go and added flagil but all in all it didnt work so i than was put on the humeria and trexol treatment which i guess u could say worked alittle but than after my RSD added in a nausea factor and i lost alot of weight it was hard to do the self injections of the humeria. So i was than put on Remicade which to me is the best crohns treatment out there. Its worked to control my crohns and everything was going all right in the crohns department. Problem is my crohns has been flaring up alot in the last couple of months and my doctor added endocort to the mix and waited to see if it would get me back under control problem is it didnt so he upped me remicade amount well that hasnt worked either. I am fortunate that cause of my RSD and the nausea with it i only usually at one meal aday so my flare couldnt do excessive. Problem is now i am lowering my one meals amount even more cause anything i eat is just going right through. I am going to set up an appointment with my gastro specialist but i am not sure what hes going to do and wondered if anyone else out there knows of any medication i might try. I really liked remicade it was a blessing for keeping my crohns under control and now that its failing i just want to get some more ideas to be able to have when i go to see him. Thank you for your help in advance.
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I found purely by chance with a good helpful and concerned family doctor. Never was this offered by my specialist. The medication is called Lomitil. She was looking at my history and had seen that a former doctor had percibed a small dose once a day when things were realy bad,at their worst. This Dr. really increased the dose. And suggested I try it again. I take two tablets 2.5mg each four times a day. The results were instainious.I was able to function as a normal person with in 24 hours. This med. slows down you intestinal activity and in turn seeming to absorbe more bile acids and allow you to go to the washroom and have a normal or at least close to a normal bowel movement and you have more control and routine and tend to go once or twice a day rather than in my case what used to be at minimum four times a day and alway imeaditaly after eating. And almost always unpredictable. Can provide more info if you wish.