8 years ! How did you stay sane Ally ? Mine has been two years now and it is hard to keep positive. As it has been - I had a few good months during our Winter and I thought perhaps I had been imagining it all. But now with the first of the summer heat I am back showing more symptoms again.

I do not have CPAP at all. The machine was a trial after the sleep study showed the REM sleep problem. I tried several different masks but only the one type of machine. That is all that Dr wrote the prescription for, and he does not want to see me again. I do find that if I take a small amount of Pred before bedtime that I seem to sleep better - so have been doing that. The respiratory dr told me to do that after my lungs started to get mucous. But he then said that was the last appt. I just feel I am being tossed around in circles. :-(