Hey Erin,

I really hope that this treatment gives you some relief! I know that PLEX helps me a lot, but it does make me feel drained (literally), so I hope that the good effects outweigh some of the bad ones... I understand your fears. I get nervous at the thought of having to have that treatment ever since I passed out the last time...But most of the time, things are just fine, so try not to worry to much....

I agree with Deb that it's odd that they're giving you PLEX right after IViG. I've had IViG after PLEX. This sorta made a bit of sense to be because I've read that that combo. (plex before IViG) can help; they're removing all the antibodies, then introducing 'new, healthy' ones. Even that didn't really seem to help me, though. I actually felt more sick after the IViG, which tends to happen with me (note to self: Stop agreeing to IViG- it doesn't work for you! lol). IViG just doesn't really work for me, but that's another story. But to give you IViG, then PLEX seems odd. They're giving you donor antibodies, then taking them all out.

Maybe you should seek out a second opinion. It's definately awesome that your doctor is totally there for you, and helps you when you need it. But from what I've been reading, you have been trying a lot of different treatments in a really short period of time. That must be hard on the body. Your body is constantly readjusting itself to all these drastically new changes (tapering from the pred., adding cyclosporine, IViG, PLEX, new pain meds., neurontin (read the last one is contraindicated for MG, in my MG bible, btw)). I know that you're feeling sick and tired, and that makes everything harder. I feel the same way too. It'd be a hassle to have to go to a new doctor, one you're not familiar with. But it might not hurt to have some 'fresh eyes' on the situation, as Deb said.

Anyway, I hope that you get to feeling better soon for a good long time!
Nicky