Thank you Marlene for this post, as a parent of a child with RSD, I would never question her pain. I relish the days that she can maneuver through a fun moment without crying in pain. I also pray that she gets sleep in the night, not waiting for her pass out from lack of sleep due to pain. I think this mom needs to take a step back and look at the big picture. I am also upset by the fact that the one doctor said they are categorizing most pain as RSD. I have never heard this. It took six years for the doctors to believe my childs pain, she had to have swelling and discoloration as well as being hospitalized for pain management. I NEVER thought her pain wasn't real and she was 10 years old at the time her pain began. I have gone to the ends of the earth to help my childs pain. It took me a while to post this reply, I was very upset it made me cry for this child.

I don't think a 10 year old could make up this kind of pain, so mom, remember YOU are her only advocate, relish the moments that she can still laugh, sleep and have fun, because they are few and far between with this horrible disease.

I will be praying for you and your daughter.

Sandy