Quote:
Originally Posted by SandyS
Keep with Pediatric doctors, Pediatrics are a completely different field. Be happy that she was diagnosed this early in the game, Childrens hopsital was a great move, stay with them, they will guide you in the right direction. Everyone has an opinion. Remember she is a baby, she is in pain and you are her mommy, so believe her, listen to her, and let her know that you are on her side. Your daughter has a great chance to go into full remission. Remember I posted for you the contact information for the Cleveland Clinics Pain Rehabilitation program. You should really consider it...It is a holistic approach to pain management. She sounds like a perfect candidate for the program. Remember BELIEVE HER...
Sandy
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Sandy,
Thanks for your comments, they're priceless!
I want to add,
about the girl being outside and playing, putting her foot in the leaves...
This is all about "testing", AND MORE IMPORTANTLY Having Fun!
This is what children want to do!
Heck, I would like to, as well!
I remember, 25-20-15-10 years ago, playing with my children, while I had RSD, and TOS.
Oh, I knew that Private detectives were making movies. I didn't give a darn.
I WANTED to have some fun With my Children! (I raised them alone).
And, if I hadto take some breakthrough meds, or get in the whirlpool, that's what I did.
I can't move like that any more. It's been about 26 years now.
(Now, I'm going to have to start some exercise that's NOT FUN)
My point is, that it's absolutely naturally human, for this child to want to have fun! Fun often creates adrenaline, Adrenaline often blocks pain.
Fun = less pain.
But, wait until later!
You've got to let her get "used to" her body, the way it will become.
The more she moves, the better, the more natural, and, let her crash, when she must! Don't, ever say to her, well since you played, now you've got to pay. Encourage her! Encourage her to have fun!
Take care of her when she''s down!
Get her used to this cycle of care, so that later in life, it's what she comes to expect, from whoever her partner is.
These are all ramifications of chronic pain.
She can be a fun, happy, well adjusted person,
or,
become the pain. Don't let the pain become her!
I know that you'll do a swell job!
Don't sweat it, be natural.
By being here, we all know that you're a very loving concerned Mom!
Our prayers for you, your daughter, and your family!
Pete