NeuroTalk Support Groups - View Single Post - Newly Diagnosed - Small Fiber/Large Fiber Neuropathy! Please Help!

Kitt · 11-10-2009, 03:12 PM

This site explains an EMG. There is also an NCV test.

http://www.medicinenet.com/electromy...cle.htm#2whyis

http://www.medicineonline.com/articl...city-Test.html

CMT is different for everyone. There are so many types of it. It is the most common "inherited" neurological disorder. Much research is being done. There are rare occasions where a mutation can turn up. Otherwise, it is inherited.

No, you do not have to have foot drop. You can have high arches, flat feet or normal feet. It depends on what muscles are affected. Your hands and arms do not have to be affected but usually does happen later on. Or for some people it is right away. Your lower legs (peroneal muscle) and feet usually are affected. If bad enough, that's where foot drop comes in and the slapping gait. It used to be called Peroneal Muscle Atrophy. Another name for it now is Hereditary Motor Sensory Neuropathy (HMSN).

I can trace CMT way back in the generations. It did affect most everyone differently. I knew I had it before it was confirmed.

There is no cure/treatment for CMT at the present time. You just deal with the symptoms and try to lead a healthy lifestyle. Exercise but not to extremes or CMT can be exacerbated. Your body will tell you. There is a medical alert list which lists what drugs not to have, etc.

There is no magic bullet, supplement, medication or the like that will stop it at the present time. CMT is progressive no matter what you do.