You know, you get much the same kind of mind set of "set minds" in other diseases as well. I'm thinking especially of my own disease, myasthenia gravis. Since I don't have the antibodies, and don't really have classical MG, I'm basically cut off from treatment by a neurologist, even though I was originally diagnosed by an expert in MG. It's like they've been taught a certain thing in Med school, and nothing in the real world is going to change that idea.
Well, that's my rant added to the rest! Now, I'm going to go back to learning how to bake GF!
That I can control, hopefully!
Hugs,