Quote:
Originally Posted by Juanitad
I discussed this with my neuro and internist and they both agreed it would be worth a try. I agree that the mestinon is probably the cause of the overactive bladder, but I think mg also affects the uretha (sp?). I didn't have any problems in this area until I started haveing wierd problems which turned out to be mg. I have had nothing but problems for the last 10 years. When the mg is under better control, the problem is not near as bad as it is when I have to take 120 of mestinon every 3 hours (which I am currently doing).
The doc at Vanderbilt is very familar with mg (which kinda surprised me) but she has a PHD in microbiology as well as being a specialist in urology. I'm going to send her an email and get an answer to the concerns about botox for mg patients and will post here once I have an answer.
FYI, I thought it was kinda neat how they decided which doc I should see at Vanderbilt. My local urologist sent a referral to the VB urology clinic and the docs sat around a table and reviewed all the referral files. The doc who was best suited to handle each case was assigned that particular case. My doc handles most of the immune compromised patients and from my conversation with her and her nurse, it is very apparent they are familiar with mg.
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Patrick here,top of the morning to you,
I have been recently been diagnosed with MG.
I had found over the last six months I had had bladder problems made worse when I started taking mestinon every three hours for breathing difficulties.
I would rather breathe ,as I am now the best for thirty years and put up with the inconvience of bladder weakness.
I have while I am waiting on a uroligist taken to wearing a very smart slimline men's incontinenance throwaway underwear.
No more washing for my wife of underwear.
When the bladder overspills when full,no wet trousers .
I is certainly different but the concerns tend ot beall in your mind as noone knows what you are wearing and you are protected.
It has also led to sexual dysfuntion at the moment ,a little embarrasssing.
Thank god it is the internet I am saying this on.
I am afraid poor Penis has all but disappeared inside and hence when using the bathroom I sit down now like a women.
It is embarrassing for us men but better to breathe and live