Quote:
Originally Posted by sdlevitt
We go on Thursday to the children pain Center here in Atlanta. We are seing a Claudia (cant remember her last name) . I am still trying to figure out why I would need to see a rheumatologist, since my pediatrician mentioned one. I would think a child Neuro might be better. We still have PT today.
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Good luck Thursday! Let us know how it went.
I know it's a horrible diagnosis, but don't lose courage and don't lose hope. There's so much experience on this forum, use that to your advantage, and please know that we mean well and only want to help. I know in your heart you'd prefer a different diagnosis to RSD, something that can be fixed and quickly, but you need to deal with this if it is RSD and other things have definitely been ruled out. RSD is hard on an adult, but it's even harder on a child. Just go the necessary medical route and tune into the forums and other resources. Most of all, stand by your daughter and don't give up on her!!!
Maybe you could check out some support groups:
http://www.rsds.org
http://www.rsdhope.org