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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Alice, This is true, but what the MG expert was saying is, that the Neurologist wants to be certain with in reason before he starts treatment with serious meds. I for one am thankful for a thorough doctor.
I will admit that it was me who didn't believe I had MG at first, so I did want several opinions, but unfortunately they all agreed. I had to come to the conclusion that I needed to trust them, and their diagnosis.
Not everyone has MG, and at some point we may need to trust our Neuros. More often than not, I believe the doctor is wanting to help his patient get better, and feel relief from the symptoms they're feeling. It's important to keep searching for a neurologist that understands MG.
However;I've read posters in the past, say over and over again, how this neuro was awful, and after seeing 10 different neuros who all say the same thing, " I don't Have Myasthenia, so I don't want to go and find another, they're all bad" Well, just maybe the person doesn't have MG, but something else that has many of the same symptoms. At some point we do need to understand that maybe it's something else, and just maybe we need to trust that the experts really do understand, and just honestly don't believe the person has MG.
This is why I tell people, "listen to your Neuro, or discuss this with your neuro" , Because chances are their doctor knows more than me about them.
Now, having said all that, I also will say, I've had my share of some real jerks, but I moved on to someone who was more experienced, and easy to talk to.
We need a balance.
But when it comes down to it, treating someone with immuno-suppressants who may not have MG, is a huge risk to that person's health. Doctors may not want to create more stress on their patients.
We need to put some trust in the specialists who deal with this day in and day out.
Love Lizzie
Last edited by Maxwell'sMom; 11-11-2009 at 06:26 PM.
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