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And what if that patient is on steroids, like Advair, which make MG "disappear" and the doctor does not even bring that up?
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Is this really true
I mean ... I saw a top Neuro, spent over $2000 to travel there to see him and he spent 5 mins with me , I did a few chicken flaps and then that was it..... cos my blood test and EMG were negative.
No one told me about the steroids...
I looked up Advair and it is 500mcg a dose - so 4 doses a day would equal what ? 2 mg ? I was taking 6mg of an oral !
Could 2mg really affect the MG results enough??...
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It took my entire life to be diagnosed (had "lazy eye" diagnosed at age 10 when it was really fatigable ptosis). And it took from my discovering my ptosis in 2000 until 2001 to get diagnosed, in another state.
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Me too. 30 years ! The fatigue has been mild and intermittent...but non the less I have suffered verbal abuse and discrimination all my life ( called lazy , could not play sport/run , have a social life after work etc )...
I realise that MG would never have been dx 30 years ago due to lack of understanding back then. But now ? Why do I have to wait another 10 years to be dx ? If ever. It does make you feel mad ...and a little cross...