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Old 11-11-2009, 06:47 PM
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Nicknerd Nicknerd is offline
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Join Date: May 2009
Location: Toronto, Canada
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15 yr Member
Nicknerd Nicknerd is offline
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Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
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I see what you mean! I sorta see what your doc. is saying about the machines, including the bipap, because even the bipap pushes out air when you're exhaling, although the pressure isn't as high as when you're inhaling...It's harder when breathing problems are caused by muscle weakness...

The reason I even heard about bipap is because I used to talk to quite a few people diagnosed with ALS who used them (this is when I thought that I had ALS, not MG...bad bulbar symptoms)....They seemed to do okay with them, and at least at some point, they have a much weaker forced vital capacity on a regular basis....It's worth it to give it a shot for sure! It's better to try and get some air, then to assume that it's not going to work before giving it a try...If you have sleep apnea, you have the right to use some device that will ensure you're getting enough air at night!

Do you mind me asking why you're taking the steroids? If it's personal, just ignore this part!

Ttys!
Nicky
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