HI SDLevitt,
I wanted to wish you luck tomorrow with your daughter at the pain clinic. First I want to apologize if I seemed a little harsh the other day. I never meant to come across that way. My daughter has been going through a lot lately...and sometimes it takes it toll on you when you don't know how to help them. So I completely understand your questioning her as to whether the pain is real or not. My daughter is going through Ketamine Infusions this week and it is difficult. I am happy that your daughter was diagnosed early and she has such a great chance to go into remission very early and very young. Get a second opinion and a third if it will help you to understand how to cope with this disease. Again, I am praying for you and your daughter. Please feel free to PM me if you have any questions regarding pediatric care for RSD. My love to you and your family.
Sandy
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Originally Posted by sdlevitt
We go on Thursday to the children pain Center here in Atlanta. We are seing a Claudia (cant remember her last name) . I am still trying to figure out why I would need to see a rheumatologist, since my pediatrician mentioned one. I would think a child Neuro might be better. We still have PT today.
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