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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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bi-pap
Hi, I was wondering ,did the doctor say why he didn't think a bi-pap would work for you? I can't use the c-pap either. I use the bi-pap. It's so much easier. I had Narcolepsey for years before I was told. When my old pulmo. left the area, and referred me to someone else, the new guy goes, "So, what are they doing for your narcolepsy " ???????? I thought he made a mistake, and had someone elses file. Then he showed me. Um was never told! Not only did the testing show I was possitive, so did the blood work show I had the narc gene. Since that time, I now make sure I ask questions after a test, and even ask for the copies of everything right down to blood tests. I read them over, and if I have a question, I ask.
You may want to do this as well. Sometimes, we have to be our own avocates  .
Best of wishes to you. I know it's a long hard road, but hang in there, they'll figure it out sooner or later, hopefully sooner.
Much Love
Lizzie
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