Hi All,

I am from the RSD family but I am posting here today because my 15 daughter was diagnosed today with Chiari Malformation. We are at the beginning of this journey.

She will be seeing a Peds. neuro. doctor who specializes in all headache and spine issues at NY Pres. Cornell on the 24th, I am also going to try and get her into the The Chirari Institute in Great Neck, Long Island, NY, they are suppose to be the best. .

I would greatly appreciate any input, suggestions, good or bad.

If anyone has info. on any doctors again good or bad please inform me. I want my daughter to get the best possible care.

My daughter is a great child and it is killing myself and my husband that she has to go through this so please any input at all would help.

Thank you,

Gabbycakes