Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Hi Everyone
Ok firstly Annie- you haven't mucked up my thread.
Lizzie- yes you are right some people do convince themselves they have a disease and then see as many Drs as possible until they find one that agrees with them.
I dont care what they call what I have as long as they start taking me seriously and start treating me. I dont find it acceptable to be labelled a loony tune and left to suffer.
( nothing in your post Lizzie has suggested that you think Im a loony tune so I dont want you thinking Im having a go at you, thats not the case, as I completely understand where you are coming from.)
What really annoys me is they (drs) disregard my response to mestinon, the ice pack test, my response to neostigmine bromide and a tensilon test. Because it suits them to.
If I had another type of disease or mental health issues then fine, but do something. I have now nearly lost three years of my life to this merry-go-round and I want to get off!
Sorry Im feeling like an extra from night of the living dead and Im having a moan. I will stop!
Love
Rach
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