We went to see the DR yesterday at Childrens Pain Clinic. Basically she RX'ed this and we are up our PT to 4/5 times a week and try to switch to the childrens sports rehabilitation, since she has provided "training" for them about RSD. She is also starting my daughter on Gabepentin , first at night. and also a voltaren gel. The burning, discoloring, etc is not that apparent on my daughter. They are also promsing the name of a good pain phychiatrist that is closer to me. They suggested mirror therapy as well. She felt that if we did all this that by the end of the year we could see results.

My daughter is not so happy that she has been diagnosed. They are getting a child her own age that had this and overcame it for her to talk to. My daughter is also ADD as well, and before this, she had finally seemed to be winning the war against that (we never did meds). That makes this harder. She would "zone out' when the dr was talking, are partly because she did not want to hear this and partly because she does that. She started to even fight us on PT for last night, but of course she had to go. My daughter is finally accepting that she has this and not a real injury, and now is worried about "what ifs". I told her that if she worked hard it would go away.

The good news is that this affects teh front of her foot, so she can do things on her heel. Therefore the rest of the foot is not being atrophy'ed. Yesterday she rode her bike and scouter (though without shoes on that foot and using her heel), but at least my active child got some exercise. She is very petite for her age and she has already gained soem weight in teh last few months due to inactivity.

If by years end things are not better than the option of going to one of the Pain clinics is there, aka Cleveland or Boston. She knows the people in Boston, and personally we also have some friends /family since we are originally from teh Northeast, so Boston might be where we end up. But right now my daughter doesnt wnat to go to school and is pitching a fit. I also have to email all teachers to explain what is gonig on.