Thread: New Member
View Single Post
Old 11-13-2009, 11:59 PM
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
Default

Welcome Moni!

It sounds like you have found some good docs - makes all the difference. In answer to some of questions:

I have only been dx'd for about 5 months. I do not have severe symptoms like many here do. I'm more like what you describe. Don't get the burning feeling too often - but I have felt it on occasion, esp. when I stand up too long. Moving around seems to help it -even though my legs feel wobbly.

What most folks here will tell you is every one is effected differently by MG and even the same person is effected differently on different days, etc. It becomes a real trick learning to recognize your 'limit' signals. Heat and stress make it worse. Mornings are usu. the best, and evenings the worst of the day. Rest helps a lot.

When my right arm 'goes', I use my left. When they both get 'funny', I time myself out for ten minutes or so! Sometimes it works and sometimes it doesn't.

Anyway, welcome to the group. You will find a great deal of 'first hand' info here. Just remember, we are each different - and while we (one exception = alice md) are not doctors, there is an enormous number of doctors that have treated the folks in this forum!!

Sue
suev is offline   Reply With QuoteReply With Quote