Hello and welcome to the forum!

Here are my answers to your questions:

Yes, I get a burning feeling in my muscles all the time. It's pretty much in my arms and usually centered in my triceps. It feels like I've just worn my muscles out - like I'm trying to hold up a barbell instead of a magazine. Things like hanging pictures or putting up shelves are impossible. Although once I did put up shelves - it took me three days on and off and I was sobbing the whole time. I can be stubborn!! Also, transferring clothes from washer to dryer is difficult and leaves me wiped out, holding up even a paperback, and while driving I sometimes have to switch arms back and forth. Actually, as I'm typing this my arms are hurting! That's as far as it gets with me though, I always pass the neuro exam. I can use my arms, it's just that my muscles feel very weak and painful.

To answer your second question, yes, it's hard for me to tell how things will go until I get up out of bed and start moving around. Being an optimist I often wake up thinking that the day will be a good one. But then like youI'll start to have problems when I actually get up. I'll get weak, my face will fall down, I'll start getting out of breath, my heart works too fast and too hard and suddenly, 10 minutes after getting up I'm exhausted and need to lie down again. Ugh!! I'm sure it can be very frustrating for you, as it is for me.

Ally