In no way did your post offend me at all. Im really sorry to think that I may have offended you in return. I wanted to avoid that at all costs, which is why I put that little bit in brackets. It obviously didn't work. So again no offence was taken and I certainly didn't mean to offend you.

As I said in my previous post I totally understood where you were coming from and I know that there are people out there that for whatever reasons see a bunch of symptoms and believe that they then have the disease.

I am lucky in the fact that the Neuro and my GP will still perscribe mestinon. I have had a long chat with my GP about mestinon and my response to it. His reply was that no one had seen it work for me objectively, but they let me take it as it made me feel better. At the time I was taking 120mg every 4 hours. I asked him what would happen to a healthy person if they took that amount of the drug. He told me that they would probably have a drug induced crisis. I told him I haven't. He couldn't answer me.

When I visit the specialist in Oxford I will be taking my mum with me as I wont be able to get there otherwise as its 3 hours away from me. I am trying a different approach this time and acting ignorant as I dont want to come across as a smartie pants!

Initially when I was diagnosed with MG, I did zero research. I didn't want this disease and if I didn't know anything about it maybe it would leave me to get on with my life. Obviously now with so much time on my hands I have found out more. Unfortunately the more I have found out, the more my symptoms seem to fit. I believe that I have another disease process going on as I seem to be suffering from peripheral neuropathy as well. Either that or they have missed a diagnosis of MS. ( my peripheral neuropathy manifests itself as a feeling in my left foot that the side of it is in cold water and my hands get pins and needles.)

Anyway, like you said Lizzie its time to move on. I like Annie, Ally and Alice don't think you said anythong offensive in your post. It certainly wasn't percieved by me in that way. I hope that we can all put this behind us.

Love
Rach