Welcome to the forum.

I can wake up feeling absolutely wonderful and then go downstairs stand in the kitchen and make a coffee have my legs shake so much I could fall down and then have to wait an hour for the mestinon to kick in.

After my hour or so on the sofa I can then attempt a shower and get dressed. Then I come back down stairs and have another rest.

My day is punctuated with activity then rest. Unfortunately I had the diagnosis of MG and then that was removed a year later.

I dont get the burning feeling in my muscles I get the shakes, so I feel like Ive been lifting 10 kilo weights for half an hour. Other days my arms feel like they are just pinned on at the shoulders, like one of those paper dolls. They feel like they are just hanging there and are no real use! Somedays I shake just lifting the TV remote or a cup.

This forum is a great place for support and friendship, its great to have you join us.

Love
Rach