Melanie, It is very nice to be able to go somewhere for support like this. Doctors can only do so much for us. No one can relate to a disease like a person who has it!
Can you believe it's been a year? Time just flies. And it doesn't get any easier as time goes by to say "no" to things your brain wants to do but your body can't. But, Rach, it doesn't help to bury your head in the sand just because a few doctors have decided to bury their heads somewhere else.
Annie