Welcome to NeuroTalk Nailgurl!

I'm so sorry for what you're dealing with, that must be awful.
Did they do a colonoscopy to look at your colon lining? Also, did they do a endoscopy to look at your stomach lining?
I would guess that you have some sort of digestive disorder or major allergy. Have you tried eliminating wheat and gluten?
Take a look at some of the following forums and try posting your questions there. We have a lot of nice people here and they should be able to give you some ideas on how to feel better.
The allergy forum:
http://neurotalk.psychcentral.com/forum90.html
The autoimmune disease forum: (That includes digestive disorders)
http://neurotalk.psychcentral.com/forum44.html
The gluten (wheat allergy) sensitivity forum:
http://neurotalk.psychcentral.com/forum13.html
I hope your doctors can figure out what it is and help you get relief.