Quote:
Originally Posted by Pat 110
Hey Kathy,
Sorry to hear your double vision is back. Maybe your neuro will just increase your mestinon so you don't have to go back on pred. Is there any chance the DV returned because you recently stopped the pred? If that is the case, I would imagine it would eventully go away in time. I remember well when I had the DV everyday for well over a year. I drove very few miles during that time and I was like a hermit. Then it just started getting better one day at a time and I was able to decrease my mestinon over time as well. I hope you are still able to go on vacation. Take care. 
Hugs,
Pat |
Thanks, Pat.
We're going on vacation come hell or high water! We're driving from Cincinnati to Hilton Head. I feel fine, but if the DV doesn't go away, hubby will be driving all the way. Usually we trade off in 3-4 hour shifts. I've been off the pred for a month now. Maybe the ACR antibodies have gotten back to a high enough level to trigger the DV. I don't know how you dealt with the DV for a whole year.
Does anyone believe that Mestinon alone helps with double vision?