I have the SCS for about 14 months now.. My trial went well so I decided I would benefit from the permanent implant.. Unfortunately.. my SCS actually hurts my RSD when I have it turned on.... it makes the pain heighten...... even with tweeking.. I am going to leave it in as to help with my "good" leg as the RSD has now spread... Sorry to share bad news..I realize everyone is different.. it was not a bad surgery nor many limitations.. I know it is in my body.. cords up my back, internally and box is in my lower left hip area..

As far as SSDI... can anyone shed some info on that..Is it true that they no longer recongize RSD as an approved disability????? Pain of a 42 on a scale of 50...I would hope so!!