Hi, yes it is a bit hard finding anyone else with this experience. I have had it for about 18 months but probably 9 of those months have been periods of remission. Only fairly recently have i jumped on the medication roundabout and have just transitioned from Tegretol to Neurtonin <sp>. I have had a tough 2 weeks going from horrible side effects while i was on both for a while to now having continuous attacks while hoping to get to a level of mediation that will work. Talking brings on an attack which never happened before so things are pretty quiet around our place! very frustrating!

I would be very interested in hearing how you and others are getting on, well i hope?