Quote:
Originally Posted by manikinxvx
1- I have been told by 3 different medical facilities that I am the oldest living survivor of congenital aqueductal stenosis. And, that I should have died years ago. Is this true? Is there anyone else out there born with C.A.S. who is now over the age of 35? (I hope so)
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Hey, manikinxvx....nice to meet you!
I'm 39 (well, one month shy) and I've had hydro since birth that the NS determined was a result of CAS...The first shunt failed in a matter of months, but the second lasted 23 years. This last one has made it 11 years.
My only real issue that developed from having hydro was weakness on the left side, due to the 2nd shunt paralyzing me...fortunately, I've managed to compensate for the weakness. :-)
Glad to see another long-lifer...
Anna