If I had a dime every doctor over the past year and a half that told me wrong info about my RSD, I would be a rich woman. I went for a check-up at my MD's yesterday and he is the ONLY person who actually knows how to treat me. He has MS, so he understands what it is that I go through. My neurologist has a fit when I look things up on the internet, but I had the symptoms of RSD long before I started looking on the web. My MD just rolled his eyes and told he that I need to educate myself so I can be the best patient I can be for the doctors. I told him that I found this board and he was really excited...I told him that there is an MS board, so he may be joining.
Being brushed off by doctors is a normal side effect of our treatment as RSD patients...I'm getting used to it, but I am armed with way more knowledge than I used to and I think it ****** my neurologist off, because I can back up what I am presenting to him.
Good luck,
Cindi