--"you've been tested for everything under the sun", do you have copies of the results of all those tests, and can you share them with us?

Forgive my skepticism, but when people say that, we often find that what they've been tested for is what their doctors can think of, which is often not as extensive as it can be.

That's part of the reason Liza Jane created her neuro testing spreadsheets (with input from many others here) to help people track test results over time, and to suggest tests that docs don't always think of. It's the most comprehensive list of possibilites I know:

www.lizajane.org

Far too many of us have been through what has been termed "comprehensive" testing only to find out it really wasn't that comprehenisve. Of course, we do recognize that there may be time and monetary/insurance considerations in attempting to gothrough even a subset of what's on the spreadsheets, but the fact remains that finding a neuropathy cause is often a long, arduous process of elimination.