Originally Posted by Cassmom

Hello and thanks for reading this. I have a wonderful 14 yr old daughter that keeps on having these strange spells of pain that regular doctors had been saying was some type of pleuracy. Finally this last time they decided that she had, had this type of pain too many times and sent us to a Rheumatologist. Just yesterday they told us that she has CRPS. This is the first time that she has ever experienced swelling in her shoulder blades and colar bone area. The pain was so severe last spring that she even passed out. When she is not having a spell she plays both volley ball and basketball. However it is now basketball season and she has missed her first three games and has even missed three weeks of school. She has finally been able to go back to school; today was her first full day back. She has been in physical therapy for two weeks now. When we went to the therapist today I explained to them that I thought her swelling was coming back and she looked at it an agreed. In the past this pain has been something that would come and last about a week and then go away. It has been over three weeks and she still has swelling and even driving over a speed bump hurts her. Can someone please explain this thing called CRPS to me I only know that because of this horrible condition I can't hug my daughter and make everything ok