Hi Rn, Thanks for the return letter. Are you doing any hydro therapy? I've had RSD 15 years . Maybe 3 years ago, my toes started curling up off the floor, and my Dr. had me do dailey exercises in our pool . I faithfully did the exercises and in about 4 months, my toes were touching the ground again. I'm so grateful. I am very aware of my limbs and any changes.
I wasn't diagnosed for 4 years, but had therapy for frozen shoulder (really rsd following surgery) I got range of motion back and remission. They warned me I may get it in other side and I did. More therapy and another remission. Was water skiing and felt pull in left hand. Hand frozen like a board, Misdiagnosed with RA, went to sports injury dr. and diagnosed with rsd in 1 minute, followed up with test. Got right into therapy and got about 50% range of motion in my hand. partially paralyzed, but grateful I can partially bend fingers. went to other hand and got right in for therapy.
It's the Limbic part of our brain that causes the symptoms you mentioned. I also have high and low blood pressure-rsd related.
I have internal RSD also. Please read about the SCS from ones that have had it. There are some good accounts, but some very very bad ones too. Spread can occur from SCS.
Take care. your friend, loretta