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Old 11-20-2009, 01:58 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
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15 yr Member
Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by MamaGirl View Post
hello. i have rrms dx in 2001. upon being scanned for a problem with my swallowing, 2 cysts showed up on my thyroid. at the bottom of the mri was a note saying:
cardiomegaly and borderline pulmonary vasculature. when i asked the dr about the results, he dismissed the note and told me its nothing, not to worry. this was 3 yrs ago. i have many symptoms that were pushed aside... should i disregard this notation in the scanned results or should i have looked into this further? i should say even before the test was taken, i had been to the e.r. a few times for palpitations and for a resting pulse of 140 or over. waiting for my dr to return to send me for follow-up with scan on neck... somehow, i think the research for ccsvi makes alot of sense and answers alot of the questions i have had over the past few years... anyone else with ms had any scan results noting cardiomegaly (enlarged heart) or pulmonary vasculature? i would appreciate feedback if anyone has. Thanks so much,
MamaGirl
thank you very much for your help...
MamaGirl
MamaGirl, I've been accused of having too big a heart but somehow I don't think it was cardiomegaly or pulmonary vasculature.

I don't have any answers but if I found something like that on my MRI report and my neurologist dismissed my questions I would press it further and do some immediate investigating to understand what it meant as far as MY body went, and possibly even go looking for a new neuro.

When it comes to my health and my body I want it explained, and if the doctor doesn't have time to explain it in detail for me, I want one who will, even if they consider it something "minor",because after educating myself, I would wonder WHY MY doctor, who is supposed to be a PARTNER in MY being as healthy and happy as I can be, wasn't referring me to a cardiologist!

I hope someone here can help you to find an answer!
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diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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dmplaura (11-20-2009), SallyC (11-20-2009)