Hi!
You don't know me I am new to this site & RSD, but I am not new to raising 4 children while battling a devastating, painful, and energy draining disease.
For me at that time of my life it was Chrohn's disease. I realize now of that bottom line it is just too hard when we are that young, full of so much energy, and zest for life, to have the compassion and understanding that those of us with a disease or disability needs. This comes with time and age. Trust me they will grow up and they will learn the compassion and understanding they need as long as they are taught it by you. Show them compassion and understanding and most of all just LOVE them and yourself thru it! Love is the greatest teacher and gift that we can give and instill in our children. It is definately one of the things that RSD or any disease or disability can rob from us. Just love them thru it unfortunately right now it is your job to teach them compassion and understanding thru LOVE. They will soon grow up and have the compassion and understanding that you deserve and need, and much sooner than you think, you will look back and think that it was just a blink of an eye. I know I sure do. LOVE them and yourself thru these times and don't let RSD rob you of the one thing you do still have control of. God Bless I will be praying for your love, compassion and understanding and for your childrens hearts to be able to recieve, respond, and reciprocate. Hang in there!