Quote:
Originally Posted by rach73
Many people can not tolerate Prednisolone or the immune suppressant drugs so they can only take mestinon.
For me Im stuck with mestinon only because I can't get anyone to diagnose me, despite the fact my symptoms are pretty classical MG.
Ive been stuck in this position for a couple of years after the initial diagnosis of MG was withdrawn. At this point Id try anything to get well. My illness affects me to such an extent I have only been out of my house three times since the end of August.
Love
Rach
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hi rach patrick here how big a population does your neuro guy serve as this may be why you are not getting enough of an expert if his polution is small when statistics show 1 in100000 people with mg and much bigger umbers the more severe the mg .I have diaphraprm problems.
It was not picked up because I bek=lieve with a popualtion in northern ireland of 1.5 million I don't think the neuro guy has ever seen someone ith chest muscles affected bymg ,no enough experience.