My child is walking , my child is walking!!!!!!

It seems that everything is finally working and the last part of the equation came into play yesterday. This week we were able to get rid of teh sensitivity which is what caused the diagnosis to begin with. The meds, combined with PT really helped. But she still could not put the front of her foot down.
The new PT was manuipulating her foot while she was distracted and she could handle it, untile he squeezed her foot. then she was in a lot of pain.
At that point he thought about a neuroma between her toes. He then put this padding on the ball of her foot in her shoe. In essence almost like her walking on her heel but actually being able to put the foot down. Now that we can wear shoes and be touched he could do this. This puts very little pressure on teh top of the foot where she hurts the most. all of a sudden she coudl walk. My little girl was BACK!!!!

So now my theory is that her original injury caused this neuroma , so some of her pain was real, but then the RSD came along, or could it never have been RSD but some other hypersensitivity? I really dont know. She could not wear socks, shoes, or be touched on her foot at the worse of this. None of the Ortho's ever thought about this because of the multifaucet of her pain. (the original orthos were just casting idiots). When you look up info about neuroma's its not common in peds, and also didnt exactly describe what she talking about. I still dont know if that is the case, but right now, with this special padding, my daughter can walk and run. She is still in pain, but can manage. I have to find out how long we need to keep her on the neurotin before we start winding it down.

I really feel for the rest of you. I could not imagine this going on for years and years from what you all face. Especially with kids. This was such a scary thing to realize when it happened to us. My daughter was in such despair that she would be facing this for a very long time. My heart goes out to all of you for all your advice and kindness. I have learned so much. It seems like we are on the way to remission here.

Thanks!
sandy