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Old 11-20-2009, 09:14 AM
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KathyV KathyV is offline
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Join Date: Jul 2009
Location: Cincinnati, Ohio
Posts: 102
15 yr Member
KathyV KathyV is offline
Member
KathyV's Avatar
 
Join Date: Jul 2009
Location: Cincinnati, Ohio
Posts: 102
15 yr Member
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Quote:
Originally Posted by allen L View Post
IM totally confused with this ocular myasthenia. Totally confused, baffled, bewildered, but most of all, , Im just so ****** off and always angry, I will never give in and admit it has taken the best of me.
Allen,
I'm so sorry that things are going so bad for you. This MG is a bitter pill to swallow. Mine is just ocular at the present time, so I've been trying to look at the glass half full. Knowing it could be a lot worse. I'm lucky in that I don't work or have kids at home, so that takes a lot of pressure off of me.

No refief on my double vision so far this week. The worst I've had. The mestinon does not help with the DV for me. Neuro put me back on prednisone (5mg), but so far nothing. When I was first diagnosed he started me at 40mg of prednisone. DV was gone by late afternoon the first day I took it. I'm glad he's being more conservative this time with the dosage, but I don't think 5mg is going to cut it. Have another call in to him.

Anyway, enough about me. I can tell by your postings, Allen, that you are very frustrated and angry with your MG. There is a man in our local MG support group who reminds me of you. Maybe men have a more difficult time "accepting" their diagnosis. I hope you find some answers. In the meantime, you have friends here that understand.

Kathy
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