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Old 11-20-2009, 05:12 PM
RNcrps2 RNcrps2 is offline
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Join Date: Nov 2009
Posts: 180
15 yr Member
RNcrps2 RNcrps2 is offline
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Join Date: Nov 2009
Posts: 180
15 yr Member
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Quote:
Originally Posted by loretta View Post
Hi Rn, Thanks for the return letter. Are you doing any hydro therapy? I've had RSD 15 years . Maybe 3 years ago, my toes started curling up off the floor, and my Dr. had me do dailey exercises in our pool . I faithfully did the exercises and in about 4 months, my toes were touching the ground again. I'm so grateful. I am very aware of my limbs and any changes.
I wasn't diagnosed for 4 years, but had therapy for frozen shoulder (really rsd following surgery) I got range of motion back and remission. They warned me I may get it in other side and I did. More therapy and another remission. Was water skiing and felt pull in left hand. Hand frozen like a board, Misdiagnosed with RA, went to sports injury dr. and diagnosed with rsd in 1 minute, followed up with test. Got right into therapy and got about 50% range of motion in my hand. partially paralyzed, but grateful I can partially bend fingers. went to other hand and got right in for therapy.
It's the Limbic part of our brain that causes the symptoms you mentioned. I also have high and low blood pressure-rsd related.
I have internal RSD also. Please read about the SCS from ones that have had it. There are some good accounts, but some very very bad ones too. Spread can occur from SCS.
Take care. your friend, loretta
Hey Loretta, Oh my gosh you have been thru a lot. It's unbelievable how the brain works. What does internal RSD feel like? Burn, muscle spasms? My therapist just mentioned trying hydro therapy. I have a pool, but didnt get in this summer b/c i was afraid of it being cold. Thinking of getting a hot tub, but don't know if i could go out in winter to get in it. I do use the tub and it does make it feel better. Has anyone used an outdoor hot tub in the winter? The thought of it makes me shiver. I have read some about SCS, but not many positive. It's like a double edged sword-get one it may cause spreading, dont and it may spread. I'M soo confused which adds to my confusion! I am going to ask PM Dr.about lidocaine inf. Are they FDA approved? See ya. your friend, donna
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