Good luck to you Krank on your trial !! I am waiting to get mine scheduled. Like you, I have gone back and forth so many times it's not even funny...plus I can VERY much relate to the "garage" thing

- the feeling of hopelessness is so hard to deal with.....
My confusion is this : I'm not even sure which fricken section of the forum I belong in because I've been told i have everything from Fibro, to RSD, to Peripheral Neuropathy!! This part of the forum seems to have the most detailed info on the SCS, but I'm new, so maybe i just need to look around better....I started a thread "Quitting Fentanyl - UGH" yesterday. It has my detailed health info regarding me losing the ability to WALK and the intolerable pain etc....
I decided to post here and reach out for help because I'm wondering how to get thru the trial SCS and be able to tell the difference between whether or not the SCS is providing pain relief at the same time my body is going haywire from getting off the powerful pain meds.
But even MORE confusing to me is HOW do I know what i actually have ???
Two different Neuro's have said it's "Small Fiber Neuropathy" per Nerve Conduction Study, however I do not respond AT ALL to ANY of the meds that are supposed to target neuropathy (Neurontin, Lyrica, Amitriptyline, etc)
One Pain Doc said yes it's RSD......one just poked me in 18 places and said i have Fibro and then bolted out the door to his next patient. I personally suspect it could have something to do with Metabolic Neuropathy from what I've been reading, but no Dr around here will investigate further. It's not like i don't have Ins or won't pay. I've spent approx $10K a year for 5 years trying to figure this out !!!..





I sound like a pathetic idiot, but all i want is my life back so i can be a wife and mother again.
Thanks for putting up with my rant......please help. Point me where i need to be. I trust in God Almighty but i guess I've been destined to wander in the desert with this curse.
Rae