Quote:
Originally Posted by Rrae
Hi, my name is Rae.....I lurk around in the sections: Chronic Pain, Peripheral Neuropathy, RSD... Frankly I don't know where i belong. All i DO know is that for the past 5 years I have been plagued with horrible pain in both legs - piercing pain at the knees radiating outward. Neurologist diagnosed me w/small fiber neuropathy via Nerve Conduction Study. However, i do NOT respond to any of the neuropathy meds (Neurontin, Lyrica, Amitriptyline, etc) I was told by another specialist (pain) that it is RSD. The pain began in the same timeframe i had broke my left hand (kicked by horse)....the hand healed fine, but this unrelenting pain in both legs is about to drive me nuts. It has basically ruined my whole life.
The only relief i get is from powerful pain meds. Currently Fentanyl 100's every 48hrs and Lortab 10's for breakthru pain. And even THEY are becoming less and less effective. SO i am VERY concerned that either: A) my tolerance is going higher and B) my condition is getting worse or C) BOTH.
I'm going to be trying a Spinal Cord Implant (targeting Radiculopathy). I have searched the forum and found wonderful people everywhere with input and struggles of their own... I just don't know which section I fall under. I am needing advice or at least point me where would be appropriate.
Please help ....  |
So glad you are asking for help-this is the place in gerneral and in specific needs for support. I am relatively new also and share on several levels as I perceive the focus. I have a very complex combination of issues, too many to list or fit in one category. And this has led me to some beautiful folks on several threads. Start with the PN forum and I am sure you will begin to feel there are things you can do to feel less dependent on pain meds alone. I encourage you to hang in there- you are not alone-and others do care and are capable of understanding where you are at All blessings to you, Tinglytoes