Jessica, Hi, you haven't been around for awhile. Hope you're doing okay.

Have you spoken to your primary doctor or neurologist about the pain? It does not sound like it's from MG. Is there cramping associated with the pain?

I have to wonder why, when you stop an anti-inflammatory drug, you would have pain. Do you have an inflammatory condition? I think you need to be fully evaluated by your primary doctor. I hate to say this but since you just had surgery, what if it triggered another problem with your immune system?

It's weird that the pain is only at night - or is it during the day too? Do you have pain before you go to sleep or after you start sleeping?

Are you on any other drugs?

I hope you can figure this out. A lack of sleep will only make your MG worse.

Annie