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Old 11-22-2009, 05:01 PM
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Maxwell'sMom Maxwell'sMom is offline
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Join Date: Oct 2006
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15 yr Member
Maxwell'sMom Maxwell'sMom is offline
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Maxwell'sMom's Avatar
 
Join Date: Oct 2006
Posts: 371
15 yr Member
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[COLOR="Navy"]Hi, and I'm so sorry you're having to deal with all the side effects of Prednisone. Prednisone can be a difficult drug to live with day to day.
I've included a couple good sites that may help you.
Coping with Prednisone* (*And Other Cortisone-Related Medicines) : It May Work Miracles But How Do You Handle the Side Effects?
by Eugenia Zukerman, Julie R. Ingelfinger This book helped me, it may be worth your reading.
Have they checked your sugar levels? Prednisone induced diabetes is a terrible problem that occurs. I'm one of those that have had an entire fleet of problems with Prednisone. But I still am on it daily, and that's after 5 1/2 years.
There is the possibility that the Prednisone itself is causing your weakness, might be worth checking into. (I'm referring to you saying every time they up it you get weaker.)
I'm so sorry you're going through all this. It can be rough, but you hang in there, it'll get better. We've all have gone through the first couple of years after diagnoses in a roller coaster. If there were a way to make it all go away for you, I would! Please know you're in my prayers.
Much Love
Lizzie

http://vasculitis.med.jhu.edu/treatm...rednisone.html
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"Thanks for this!" says:
sugrkiss (11-22-2009)