If you look at the "essence" of what MG is, it is weakness. And that weakness should get better on Mestinon. MG is NOT about pain. You may get mad but that does not "kind of go with" MG, like your doctor said!

If it's in your lower body only, then you should look to your spine. Being on or off of Mestinon can affect the muscles surrounding your spine. Muscles are what keep your spine healthy and "in place." With weaker muscles, you can have pinching of nerves, etc. And if your bed is not the right kind of mattress for you, it can make a spine issue even worse at night.

Maybe keep a log of symptoms, when they occur, etc. And then go back and talk to your neuro.

And I would be remiss if I didn't bring up the possibility of a vitamin D or vitamin B12 deficiency.