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Old 11-22-2009, 08:26 PM
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

Tammi,
I too, am sorry to hear about your daughter's dx.
I have had rsd for 26 years.
Cam you tell us what caused it? Was there an accident, or injury?

Anyway, we currently have two mom's with their daughter's, and also a sweet young lady who has this monster.
WE got some real good news today.

I think, I hope that these ladies will be in touch with you!
You can go private if you wish.
After 26 years, I know it took 7 years for my dx. Too long.
I'm too far gone, and live on pain killers (methadone, and a cocktail of others).

Get your daughter to a Neurologist that is KNOWLEDGEABLE with RSD! He'll take it from there! (When I say a Neuro who's Knowledgable, I mean exactly that! Where do you live? Near a city? A good hospital? A university hospital? That would be great, get to the "Cheif of Neurology"!
Don't Wait!
TIME is now of the essence!

(What type of doctor(s) have dx'd her? Have they sent her for any treatment?
What are they saying?

Please! You have a short window of time to "cure" her now! TAke it by the horns, and do it!
The Cleveland clinic, Philly, There are many good doctors, thank God, when I got this, there were hardly any!

Read the current threads, and PM or write to those "Mom's" who have just gotten some, or are about to take steps for their daughters!
Take a page from their "book"!!!
As I said, Time is Critical!
Even if you must pull her from school for a short while!

Do what you must, so that you daughter doesn't live a life, like I am!

PM me, if you wish....

love and Prayerss..

Pete

asb
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"Thanks for this!" says:
Kakimbo (03-15-2010), kate88 (03-14-2010), loretta (11-22-2009)