Tammi,

I went the same route, except it took 3 orthos to get the diagnosis and then went to the pain doctor. I never went to the neurologist. the most important person(s) we saw were the PT's . the 2nd ortho at least sent us to PT. I learned a lot here on this forum. I learned not to ice, but to heat. I got a lot of support, and writing about it really helped.

The other very helpful thing was to get my daughter into the pool. That really helped with desensitizing her. The pain Dr was able to put my daughter on Neuronton, which also helped. A rice bucket made for good home PT.

Currently my daughter can now wear shoes, socks, etc. She can even walk with padding on her foot/in her shoe. She still has pain, but its no longer on the higher range, aka from a 5-10, but more from a 1-6.

I have the same questions as the others. Was there an original injury? How long until the diagnosis?