Hi Tammi,
I have a daughter that is 16 years old, her RSD started in her left ankle, unlike you it took too many years to diagnose her. She has gone through two pain Rehabilitation programs and has had 4 sympathetic Nerve Blocks a multitude of opiads and in July of this year she went through Ketamine Infusions and had Ketamine boosters two weeks ago. She is now close to being in remission.
We now see Dr. Kirkpatrick in Tampa, Florida. He has been amazing. Being that your daughter is in NC and you are in Texas, my advice would be to make sure that she is seeing a doctor that knows RSD. Your daughter is in the beginning stages of this disease, you need to go full speed ahead, get this under control immediately, don't wait. The sooner you get it under control the more likely you will see remission. Feel free to PM me if you have any questions. I know of two other teenage girls on this forum that are getting ready to undergo the Ketamine Infusions. But, they have been suffering for a very long time.
Was the the nerve block successful? Did her leg and foot heat up? Make sure she stays in the pool, that is the best therapy for RSD. What is she taking for pain? Is it possible for a family member to be there with her? She will need someone to help her. My prayers are with you.
SandyS
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Originally Posted by tammi1360
My Daughter was recently diagnosed with RSD. She has been seen my a Orthopedic and a Pain Specialist. But not by a neuro doctor. Both doctors she has seen both agree she has RSD. The test that was done in the pain specialist office was to test the temps in both her feet. Her foot also changed colors while in the ps office. Does she need to see a neuro doctor/ She has had on nerve block so far and on meds. She is in college and near home so she has gone with her trainer from the university for these appointments. Any help would be great. Have read a lot from the RSD website.
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