I ended up going into PT but I told the therapist there was NO WAY I was doing the contrast bath. He was upset. Told me he is going to speak with my doctors. I told him he was more than welcome to. I KNOW my body and I KNOW that it is making it worse. There are two different pains. The hyper sensative pain on the surface, and the deep pain inside. The cold irritates BOTH, the inside pain increases ten fold with the cold. I won't do it! I Know in my gut it is wrong. There are other things they can do to desensatize my foot. I left without any therapy at all.
So My pain specailist called me this morning and cancelled my nerve block for this afternoon. He spoke with me directly and he wants to see me this wednesday for a regular appointment to discuss my treatments and other options since the nerve block only lasted a day. He is very concerned and said no more PT until "we" understand things better.
I told him I Understand things better it seems than my team of doctors. I live in a very very tiny town with a limited amount of doctors. They were calling it causlasia at first. If that says anything?
I am MAD! Mad enough to MAKE them understand this! I apologized to my doctor for being rude and he said no need, "You are just making men be men and doctors be doctors" I think too they are scared I might sue. I won't. I am not interested in that. I ONLY want to get better and I will not allow those who know little about RSD try to treat me without knowing how.
My pain specailist mentioned maybe another surgery!! I said WHAT FOR!? He said to maybe explore other reasons for the pain. I said there is no way I am doing surgery! We will talk when we see eachother on Wednesday!! GOOD GREIF!!!!!!
I will never ever do contrast baths again. I stood up to the therapist and I may have lost a place to do therapy, but I don't care. I will never go through that pain again!!
Thanks you to all that have responded. I am in a better place now. I was in such a bad state of mind, wracked with pain and feeling so lost the other day.
Thanks again!
