Senior Member
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
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Senior Member
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
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Hang in there.
Try to get to the nearest big city hospital's pain clinic - hopefully one that is associated with a good university - ASAP. Traveling can become really uncomfortable as RSD progresses, so try to do it now. And it might take some time to get in - some of these places have a long wait to see the better docs.
I believe that I suffered a lot of harm by staying in RI for as long as I did after my probable diagnosis of RSD. After my 2nd rotator cuff repair surgery, I was exhibiting signs of RSD and my ortho's PT team never picked it up (they told me ice was "my friend" - I used to sleep with it on my shoulder because I was on fire!!). Then the RI pain manangement doc I to which was referred never performed any blocks; rather, he injected my cervical spine and the back of my head with TP injections full of steroids. My RSD spread from my shoulder to all of the injected areas within a month or two of the injections. I just didn't know any better, and relied on the docs in this teeny, tiny state to help me. And I will always suffer because of it. It was 6 months after the date of my probable diagnosis, Christmas Eve, before I found a great team of docs in Boston and had my first nerve block.
The RSDSA.org website has a lot of great info - I am almost certain it provides a database where you can find pain management docs and/or anesthesiologists by state.
And not for nothing, but if WE can do your research, why can't our doctors and PT's? I thought for a long time that perhaps I would sue my RI docs for hurting me so badly and causing this to happen to me. But in reality, that is easier said than done!
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