@ Sandy,

Yes! I hear you! WHY can't they find this information? Why? I know they are busy but they agreed to take me on. IMO they need the education and need to KNOW HOW to treat me. I am going to do everything I can to TEACH THEM. For me it would be 8 hours of travel to the closest RSD specialist. I am sorry. I didn't ask for this, I can't help they never had to treat someone with RSD, but now they do. They took an oath when they became doctors, and damn it they are going to live up to it!

I managed to get into contact with an "RSD coach" an advocate that has called me herself and has helped me greatly! With her help I am going to get these doctors updated and on the right track. This RSD coach has been a wealth of information and has the latest treatments and latest news. Just when I thought I was really going to lose my mind, the Lord sent me her!!

I am not giving up. I have a meeting with my doctors on Wednesday and they will listen or I will get an attorney. That is all there is to it. I have a lot of years to live on this planet and I am not going to allow anyone to make this worse, screw it up, or do anything to get in the way of progression towards remission. They will get on this bus with me, they HAVE to, they agreed to treat it.

They can hardly turn me away, seeing how they have already made a few mistakes, some pretty serious. Like the surgery they put me through, and the cast I was made to wear for 8 weeks. I fractured my eye socket due to the cast I should of never been in. I fell on the crutches. Now my vision is screwed up.


OH they will get on board, and learn about RSD and do what they are suppose to do, TREAT ME! I am angry now. It's been 9 months of this and that, and suffering! Not any more. They gave me hope, they told me they could fix this, one said I would be in remission by spring, now he has to do everything he can to live up to what he said to me. I WILL hold him to that, and he will have to learn HOW to treat it and what to do with lil ol me. I have the same rights as anyone else in this town that could of been struck with it, or may be struck with it in the future. Rinky dink po dunk lil country town or not!!

*steps off soap box*

I'll take it to the media if I have to.

I know I may never go into remission, and I know this may be a very long road, I know what the reality is. I just want these Doctors that have agreed to treat me, TREAT me and do it with all the information I have, and be on top of it, and not do things that might make this worse. I should be able to expect at least that! ANYONE who has RSD should!! It is not a NEW thing to the medical field!! It is something EVERY doctor should know about and at the very least know how to recognize! EVERY Pain specialists Should all be up to date on it!

I am also snding a letter to every single doctor that misdignossed me, telling them what it is that I actually do have and sending a packet of information on RSD. Along with the information on what they did to me and how badly it effected my RSD and caused it to spread as well as progress. I will not sue them but I plan on CC my lawyer with each letter. I will take great joy in telling the one doctor that I was not a med seeker and will point out the classic symptoms of RSD and how they ignored me. I will leave my foot prints. Maybe , just maybe they will think the next time someone presents with RSD!!