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Old 11-23-2009, 09:14 PM
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Natalie8 Natalie8 is offline
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Join Date: Apr 2008
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Natalie8 Natalie8 is offline
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Join Date: Apr 2008
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Sally, I think some people aren't necessarily viewing CCSVI as the "cure" in terms of eliminating all symptoms but as a way to stop MS progression. In other words, for some people they just want to remain stable where they are and not get worse. Whether or not the brain can repair itself after the damage is already done and the veins are opened up after the procedure is another story. I've been reading a lot on thisisms.com about CCSVI for the past few months. You are right that nothing really "miraculous" is jumping out but people are reporting improvements in fatigue (no more napping), cognition, reduced spasticity, ability to walk longer without resting. The doctor at Stanford has only been doing this since May. I guess time will tell!

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Originally Posted by SallyC View Post
Thanks, Keri. I went over there and read about 10+ patient reports of their before and after results of the procedure and most of them have only had subtle improvements, but in some cases, it is too early to tell??

They did report some neck and shoulder pain due to the procedure, lasting about 2+ months.

There was one 100% positive report of, "my MS is gone".. She had the procedure about a year ago..(the longest)

It didn't look quite as positive as I expected, but time may change my mind.

Here is the link to the reports...
http://www.thisisms.com/ftopict-8346.html
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"Thanks for this!" says:
dmplaura (11-24-2009), Jules A (11-24-2009), Riverwild (11-25-2009), SallyC (11-23-2009)