I'm sorry you are feeling this way as well. This whole nasty thing comes on as shock after shock until you realize all the things you are wondeful new things your body is doing. I think you are well aware of everything now and you are feeling overwhelmed by it as I did. The biggest bit of advice I can give is to find your triggers. What makes your pain worse? I know that sitting a certain way or reading with my head down, or the worst: sleeping on my stomach, elicits the symptoms. As well when I press too hard on something, like typing for a long time starts to agitate things until I start twitching or start getting the electric zaps.

Is there any way when your symptoms occur, that you can think of what you might do that coincides with the pain or uncomfortable? Another example, I noticed when leaning over many times I would start to twitch feel pain and get burning sensations in my limbs. Likewise, I used to be able to exercise without much problem besides some persistent leg pain. Then all this stuff and I had to learn that when I started feeling a certain way, it was time to quit or slow down or adjust. If you can tolerate it, I would get off the meds for a couple days and figure out what your triggers are if possible. Neurontin blunts pain sensations, so you can't get a good map of this without going cold for a day or 2.

As far as taking Neurontin, I had problems as well(made reflux worse, brain fog, other problems, etc). So, I started researching herbal alternatives and found the herbs: Bacopa and Gotu Kola. I took these in tandem for the better part of a year and my depression lifted and was able to think clearer and recognize and work around these triggers even better. Both of these herbs stimulate the neurotransmitter Gaba like Neurontin does, but in addition increase Acetylcholine(good for nerve rebuilding) and Bacopa increases Serotonin(good for Depression) and increases endogenous levels of Antioxidants SOD, Catalase and Glutathione. As well I started using Magnesium Oil(helps build and repair nerves and function and is a muscle relaxer, increases ATP cellular energy, the list goes on and on.) I also take Taurine(increases Gaba, reduces inflammation, detoxicant)

Antioxidant therapy for us is important(what the doctors won't tell you). What I think you eventually want to start taking maybe in tandem with other herbals is R-Alpha Lipoic Acid(the best medicine to treat root of neuropathy)and Acetly-L-Carnitine(increases acetylcholine and cellular energy, most powerful nerve rebuilder). PM or respond and I can give you more information if you need. I think it is ridiculous that doctors don't have any of this information and let people suffer.


This is just from my own experience and research:

In terms of importance for Small Fiber Neuropathy:

R-ALA
Acetyl-L-Carnitine (ratio is 2 to 1 acetyl to ala) (don't take acetyl-l without R-ala)
Magnesium Oil
Fish OIl(get a quality one)
Taurine
Gotu Kola
Bacopa
MSM(detoxify, pain)
B-12
Multivitamin